Editors

Emmanuelle Batisse, BSc, completed a Bachelor of Science in Biology (2014) and is now a Master’s student in Environmental  and Occupational Health in the School of Public Health at the Université de Montréal. For her research project, she is interested in the health effects and social inequalities associated with the exposure of sensitive populations to the industrial emission of air pollutants in Quebec. At the same time, Emmanuelle believes that science must be shared and is therefore involved in several scientific popularization events, such as the Eureka and Pint of Science festivals and a CBC youth program. Competing interests: none declared


Cécile Bensimon, PhD, is Director of Ethics at the Canadian Medical Association. Cécile earned her PhD from the Institute of Medical Science at the University of Cecile BensimonToronto. She was previously at the University of Toronto Leslie Dan Faculty of Pharmacy and Faculty of Dentistry after returning from a visiting scholarship in humanitarian and disaster ethics at Tel Aviv University’s Sackler School of Medicine. During that time, she built on her expertise in public health ethics, in particular ethical issues raised during public health emergencies such as the use of restrictive measures in contexts of contagion and resource allocation in contexts of scarcity. Previously, she was a research scientist at Bridgepoint Health after completing a Post-Doctoral Fellowship at the University of Toronto Joint Centre for Bioethics Canadian Program of Research on Ethics in a Pandemic (CanPREP). At the height of the H1N1 pandemic, Cécile acted in an ethics advisory capacity to the Canadian Public Health Agency (PHAC) and Public Health Ontario (PHO) to guide vaccination prioritization plans. Prior to that, she was a Research Fellow with McGill University Faculty of Law Centre for Intellectual Property Policy where she was a member of the International Expert Group on Biotechnology, Innovation and Intellectual Property that sought to develop more effective intellectual property systems to bolster access to essential medicines. As part of her work in global health, she jointly authored the book, Bioindustry Ethics, on ethical decision-making and corporate social responsibility in the bioscience industry. Cécile began her career in diplomacy with the Canadian Foreign Service after having earned a Bachelor of Social Science in International Development and Globalization and a Masters in Political Philosophy from the University of Ottawa. Her recent publications, which have appeared in Social Science and Medicine, the Journal of Bioethical Inquiry, the American Journal of Bioethics, and the American Journal of Public Health, reflect the breadth of her research interests that include disaster ethics, public health ethics, mental health ethics, and dental ethics. Competing interests: none declared


Stanislav Birko, BSc, is a master’s student in the Bioethics Program, University of Montreal; he has a B.Sc. in Applied Mathematics and Philosophy from McGill, in Montreal. Currently studying bioethics in the Department of Social and Preventive Medicine, his research is being pursued under the supervision of the Dr. Vardit Ravitsky, on the ethical issues posed by the implementation of prenatal noninvasive screening (NIPT) in Canada. He is currently the Research Coordinator of a component of the “PErsonalized Genomics for prenatal Aneuploidy Screening USing maternal blood” project as well as research assistant on a project on research ethics of the Precision Medicine Policy Network. His parallel research interests include the democratization of research and foresight (genomics foresight). Competing interests: none declared


Sophie Bontemps, MSc, is a PhD student in Public Health and Health Promotion at the Université de Montréal. She completed a nursing diploma in 2011, then a degree in Nursing Sciences and Paramedical Research and a Master’s of Public Health, Health Promotion and Environment in France. She worked in a psychiatric hospital and then on various health promotion projects in Switzerland. She currently works on Pr. K. Frohlich’s project on Interdisciplinary Study of Inequalities in Smoking as a coordinator. Sophie is interested in ethics and public health. Competing interests: none declared.


Julien Brisson, MA, comes from a rich background in the social sciences with two bachelor’s degree; one in anthropology and the other one in sociology and feminist studies. His master’s thesis in medical anthropology at the University of Ottawa was based on an ethnographic research in Toronto on HIV, public health and young gay men. Julien then worked as a research assistant in Paris and San Francisco doing research on a new pre-exposure prophylaxis drug that prevents HIV. Julien currently works at McGill’s Department of Family Medicine and the Jewish General Hospital doing research on lung cancer diagnostic. After doing a microprogram in bioethics, Julien is starting in September 2017 a PhD in bioethics at the School of Public Health at the University of Montreal under the supervision of Bryn Williams-Jones and Vardit Ravitsky. For his doctoral research, Julien explores the ethical public health issues related to women’s reproductive health in the context of the Zika epidemic in Latin America. Competing interests: he works under the supervision of Bryn Williams-Jones


stephen clarkeStephen Clarke, BA, is an MA candidate at McGill University in Philosophy, in association with the Biomedical Ethics Unit. His masters thesis examines the intersection of feminist care ethics and its implications for patient-centred care, particularly in contexts that involve vulnerable patient populations and other groups on the margins of healthcare.  He is currently contributing to research projects concerning the ethics of disaster research, community based rehabilitation, and telemedicine. Stephen’s training is in philosophy, but his work has expanded to include interdisciplinary approaches to bioethics research. He is also interested in philosophy of science, with a focus on feminist epistemology, evidence-based medicine, and the negotiation of social values in scientific theory. Competing interests: none to declare


MarleenMarleen Eijkholt, LLM, PhD, is an assistant professor of Medical Humanities at Davidson College. Here she teaches clinical ethics, neuroethics, and health law, policy and ethics. Marleen also works as a clinical ethicist at Carolinas Medical Center. As such, she consults on the ethical issues that arise in the practice of medicine, such as surrogate decision-making, end-of-life decision-making, organ donation, issues around birth and pregnancy, anorexia and force-feeding and moral distress. In this role she further helps to develop hospital policies, quality improvement mechanisms and education opportunities for providers. Before arriving in Charlotte, Marleen did a clinical and a research fellowship training, respectively in Albany, up-state NY, and in Vancouver (Canada). She worked on many projects and published in peer-reviewed journals on stem cell interventions for spinal cord injury, imaging technologies, placebos, human rights and reproductive issues. Her background is in law and bioethics, with a particular focus on international comparative health law, human rights and legal theory. She has an LLB/LLM degree from the Maastricht University (NL), and a PhD in Bioethics and Medical Jurisprudence from the University of Manchester (UK), which focused on the right to procreate. Marleen held associate lecturer positions in diverse institutions and was awarded several prestigious grants, amongst which the “Talent for the Future” scholarship in Maastricht. She was at the Bioethics Committee of the Council of Europe in Strasbourg (FR) from January to April 2010. Marleen combines legal, theoretical, philosophical and clinical ethical approaches in her work; she is excited to combine both theory and clinical reality in her professional life as an educator, researcher, and consultant. Competing interests: none declared.


Agathe François, MA, is a PhD student at the Université de Montréal (communication) and the EHESS (Paris, sociology). Influenced by her background in political sciences, she is interested in the political and social dimensions of disruptive technologies. Her master’s thesis dealt with transhumanism, the utopia it has to offer and the biopolitics in which it is taking part. She is currently focusing on the way bioethics is entangled in ideological views that fill discourses on disruptive technologies and transhumanism, and on the necessity to build a dialogue between science, humanities and art. Competing interests: none declared.


Patrick Gogognon, MA, has a Masters’s degree in bioethics from the Université de Montréal. Since 2011 he has been working with the CHU Sainte Justine REB as a Research Ethics Advisor and has been Vice-President since 2014. His interest in ethics in global health research has led him to undertake a PhD in bioethics. As part of this research, he has deepened his study of ethical issues related to power asymmetries in global health research partnerships. Patrick is also interested in the issues of justice and equity for researchers in developing countries in the context of research partnerships. Competing interests: none declared.

mona.gupta


Mona Gupta, MD, PhD, is a consultation-liaison psychiatrist and researcher at the CHUM in Montreal. She is also Assistant Professor in the Department of Psychiatry and in the Bioethics Program of the Department of Social and Preventive Medicine, at the University of Montreal. She received her medical degree from McGill University and completed her residency and fellowship training in psychiatry at the University of Toronto where she also did her PhD in bioethics. Her areas of academic interest are in bioethics and the philosophy of psychiatry. Mona is widely published on the subject of ethics and evidence-based medicine in psychiatry. Her research monograph on this topic will be published by Oxford University Press in 2014. Dr Gupta is actively engaged in the bioethics community. In addition to her role in BioéthiqueOnline, she is a member of the editorial committee of the Journal of Ethics and Mental Health, an executive member of the Association for the Advancement of Philosophy and Psychiatry, and a member of the RCPSC Bioethics Committee. Competing interests: none declared


Marie-Eve LemoineMarie-Eve Lemoine, BSc, PT, MA. After completing a bachelor’s degree in physiotherapy and working in a hospital context for two years, Marie-Eve moved on to the Bioethics Program at the University of Montreal to deepen certain ethical reflections relating to her practice. In contact with the students and faculty of this program, she quickly broadened her horizons and developed a strong interest in reproductive ethics. While continuing to work part-time in physiotherapy, she completed her MA thesis on the relevance of public health initiatives — and the associated ethical issues — to infertility and advanced maternal age. Marie-Eve then took a break following the birth of her daughter, and then in 2014 began her PhD in bioethics under the direction of Professor Vardit Ravitsky at the University of Montreal. Her doctoral project focuses on the ethical and social issues of non-invasive prenatal diagnosis (NIPT). In the context of the PEGASUS project, sponsored by Genome Canada, Génome Québec and CIHR, Marie-Eve’s research seeks to develop and evaluate interactive information tools for patients, to promote informed choice in relation to NIPT. Her PhD project is funded by a scholarship from the FRQ-S (Quebec Health Research Fund) for health professionals. Competing interests: none declared.


Zubin MasterZubin Master, PhD, is an Assistant Professor at the Alden March Bioethics Institute, Albany Medical College. He holds a doctorate in cellular and molecular biology from the University of Toronto and has performed a post-doctoral fellowship in bioethics and health policy at Dalhousie University and the University of British Columbia. Previously, Zubin worked as a Senior Policy Advisor/Analyst at Health Canada. Initially he developed regulations on assisted human reproduction and embryo research under the Assisted Human Reproduction Act and subsequently led the development of the Health Canada Scientific Integrity Framework. Zubin’s area of research interests in bioethics focuses on the ethics and policy of embryo and stem cell research, genethics, the ethics and governance of research involving humans, and the responsible conduct of research (research integrity). He has published dozens of articles on diverse topics, including stem cell tourism, biobanking and informed consent, commercialization of stem cell research, hype and public trust, and the responsible conduct of research in scientific publishing. Zubin continues to serve or has been a member of several governmental and non-governmental committees and journal editorial boards. Competing interests: Zubin is a longtime collaborator with Bryn Williams-Jones.


Cynthia Noury, MA, is pursuing a joint doctorate in communication with a focus on research-creation at UQAM, through which she is studying interview practices in a media context and more specifically in the development of the reflective and performative interview. Her fields of interest also include relational and contextual practices, as well as audio creation. Cynthia participates in the activities of the Mobile Self-Narratives Laboratory (LRSM) and the Urban Imaginary Catalyst (UCI), which will be involved in the future Outremont site of the Université de Montréal. Through a collaboration between the Hexagram Research-Creation Network and a team of specialists in ethics and scientific integrity attached to the School of Public Health at the Université de Montréal, she is also involved in an FRQ-financed Concerted Action project to development training tools on responsible conduct in research-creation. Before making the jump to research, she also worked as a reporter and journalist. Competing interests: Cynthia is collaborating on a research project led by Bryn Williams-Jones.


marianaMariana Nunez, MA, Ethics counsellor, Université de Montréal. Mariana Nunez, has a Bachelors in biology, a diploma in education and a Masters in Bioethics from the University of Montreal. She worked as a research assistant on various health science projects at the University of Montreal and McGill University. Currently, she is a research coordinator at the CHUM. She also works as an ethics counsellor at the University of Montreal, where she is responsible for annual continuing ethics review of research projects. Since 2011, Mariana has been a substitute member specializing in ethics for the Research Ethics Board of the CÉRT du Centre Dollard-Cormier – Institut universitaire sur les dépendances, and since June 2013, on the REB of the Clinical Research Institute of Montreal (IRCM). She is deeply engaged in bioethics teaching and since 2007 has worked as a professor teaching the course “Bieothics and Society” for the BSc in biotechnology at La Cité college in Ottawa. Competing interests: none declared


Danielle Paciulli, MA, DPS is a Clinical Ethics Consultant at Stony Brook Hospital, New York, where she is part of a team providing consultative services to patients, families and the clinical teams. She also teaches a range of bioethics, global ethics and bioethical conflict courses to medical, public health, and graduate students. She received her BS in biology and chemistry from the University of Hartford, an MA in medical humanities and bioethics from Stony Brook University, and a doctorate from Albany Medical College in health ethics and policy. Dr. Paciulli’s career goals are to become a dentist and has been practicing as a Chairside Dental Assistant for 8 years. Her goal is to combine her clinical interests in dentistry with scholarship and teaching in dental ethics among other areas. Dr. Paciulli’s research interests focus on the ethics of dental and geriatric dentistry, organ donation and transplantation ethics, health ethics and policy of special populations, research ethics, and global bioethics and social justice. Competing interests: none declared


JPoupartJean Poupart, BCom, LLB, DDN, MA, has practiced for twenty years as a notary in Quebec. A return to studies in the Bioethics Program at the University of Montreal was the catalyst that led him to choose to live full-time his passion for this area of practice. Member and president of a private research ethics board (REB) for 18 years, coordinator of an REB responsible for 10 addiction rehabilitation centres of the Quebec health network and a member of two REBs at the University of Montreal, Jean had the opportunity to familiarize himself with a diversity of contexts. He completed in 2015 a Master’s degree in bioethics about the ethical acceptability of financial incentives offered to healthy participants in clinical studies. He is particularly interested in the scope of ethical principles and standards of various regulatory texts that guide the thinking of REB members. Competing interests: none declared